Saturday, March 29, 2008

Yesterday completed week 6 of treatment. The doctor said his kidney levels are still a bit low and he is now slightly anemic. They will give him fluids on Monday and Tuesday and test his blood again to see if he can get chemo on Wednesday. He is very tired and feels miserable. He is on some very strong pain medicine now and is still in a lot of pain. The Oxycotin is still not alleviating all the pain, so he is using the Hydrocodone every 4 hours for breakthrough pain. His neck is raw on the outside as well, even though he has been applying the prescribed creams as directed. He looks like a burn victim. You can see this black line on the side of his face that goes down his past his collar. There’s this ring just above his chest – like he was in the sun with a round t-shirt on. They said this is all normal. He looks terrible and his eyes are all glossed over and rolling back in his head when he tries to keep them open. His mouth is so swollen that you can see if from the outside. The kids don’t seem the least bit phased! He isn’t sleeping well either because he has to keep getting up to spit. The mucus part is so bad and he tried using Mucinex, but it dried him out too much and made it too difficult to even spit, so he was choking more. You can hear the gurgling all the time, so he just keeps spitting it out so that he doesn’t choke on it. He refuses to spit in a cup, which is pretty gross. So instead, he gets up throughout the night to spit. He even gets up during treatment and has to drag his IV with him to the bathroom. Just one more week to go!

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